Thursday, May 13, 2010

No Room for Sadness

Now that Adam is already 2 months old and settling nicely (will write about it later), it is a little difficult to recount the dark days of his first month of existence.

Adam was born on a Friday afternoon with his eye procedure carried that same night. The day after, the Paeds Doctor came to see us to share Adam's prognosis as Crouzon Syndrome, a rare ailment that caused a early fusion of the skull.

But the NeuroSurgeon who was supposed to explain the ailment to us further was away for the weekend. Hence, with only the Internet as our source of information, we learned about the ailment as best that we can. And with the Internet being an inanimate source, the information that we found somehow came accross as a scary thing and doomed situation for us.

Somehow or rather, the DSH Ophthalmologist became my first source of comfort that weekend. Apparently at DSH, Ophthalmologists also sometimes doubled as Counselors (kidding :). While speaking on the topic of Adam's eye condition, we also touched on the subject of Crouzon and other related issues.
I actually mentioned that receiving Adam into the world was supposed to be a happy occassion and trailed off with a big 'But...' hanging in the air.

Dr Radji admonished me and said that it was a happy occassion! With Adam showing his early signs of being a fighter, she also reminded me that technology can now do wonders. With the subtle helping hands of God, Adam has nothing to look forward to but positive things. She also mentioned that we were often dealt with random wild cards and that we should accept what was given with open hearts and minds.

Feeling a little guilty of the negativity that I felt about the situation at the time, I embraced Dr Radji's words of wisdom and decided there and then, that I would move headlong with the situation and take whichever road that God has put in front of me, with the best ability and resources that He has bestowed upon me - all fo the sake of Adam's and our family's wellbeing and happiness.

It was also then, that my husband and I decided that there should be no room for sadness. Worries, yes....but not sadness.

Like Dr Radji said, receiving Adam into our lives was a happy occassion and que sera sera.

Knowledge and prayers would guide us from that point onwards.

2 comments:

  1. Please know that we will hop on and take the ride with you, no matter how bumpy it may be.

    hugs and take care!
    K Nun

    BTW, Abang wants me to let you know that he tried to put up a comment, but couldn't.

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  2. me too Eina. WE will do this together. Every challenge only makes us stronger and Adam is strong.

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