About Turn!

On March 5, 2010, we welcomed the latest addition to our little family - a baby boy we named Muhammad Adam Faiq. Today marks our little bundle of joy's 2 month birthday and I feel that today is the best day as any for his Mommy to start of her recount of their their current and future family adventures centering on little Adam himself.

You see, our Adam is one in 25,000 or, in some census, one of 16 in every million people in the world. In short, our little Adam is special. At birth, the doctors diagnosed him to have a rare medical ailment termed as the Crouzon Syndrome.

'Crouzon who?', you might ask. His father and my reactions too at the time.

Jenny67's homemade video on 'What Is Crouzon Syndrome' very effectively explains what the ailment is all about.

What I hope to achieve with this blog is not for it to serve as a medical journal but rather to share experiences from a layman's point of view so that many who are in the dark about this ailment can be more informed and those who are already going through such similar experiences, know that they are not alone in this.

Please also be forewarned that my family and I are of the Muslim faith and from Asian origins. While I will not, consciously, belittle any other beliefs of the world, I may make references to our experiences in religious context, though quite sparringly, I promise (smile).

So, for those who would like to share our journey, hop on and hang tight! It may be a bumpy ride. Let's pray for a safe journey and happy destination.